I am mad as all heck. I want to scream. In fact, I want to stomp my feet, cross my arms, and scream like a little girl! I can't believe it, and I just can't take the setbacks much longer.
Today, Brandt went to yet another doctor, this time an ear, nose, and throat specialist. Because he has only had one ear infection, I never could have foreseen the results that he gave us... Brandt needs tubes. He has a heavy, honey-like fluid in ears. The doctor says that it is most certainly affecting his hearing, and he will have a hearing test done tomorrow. The doctor said Brandt's sense of hearing right now is probably like being under water. So, following the appointment with the audiologist tomorrow, they will schedule a pre-op appointment--Brandt will have to have his ears tubed. The ENT also continued and said that Brandt's hypotonia is greatly affecting his ability to swallow.
But, if that is not enough to ruin my day, this also means that his MRIs will need to be delayed because he has to have his ears corrected first. Which means more delays. On top of that, we call the neurologist's office, and they have not even sent in a request for authorization of the MRIs yet because they are still waiting on the neurologist to finish writing his formal report--which is ridiculous to me since we were there two weeks ago.
All this waiting and wondering is really starting to get to me. All of these doctors appointments with the pediatrician, pulminologist, neurologist, ENT, audiologist, and therapist are about too much for me to handle. It seems like every time we take one step forward, we get kicked in the butt by reality and fall two steps back.
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