Back to Battling

Well, last night I fell apart, but then I quickly regrouped and researched. I spent much of the evening and early-night hours finding out all that I could and preparing myself for today. I mind was restless and my heart was steadfast.

I started today on a mission. I was no longer a moping mom but a battler for Brandt. I feel like I spent most of the day on the phone, but I got all the necessary appointments scheduled. We are ready to move forward, and I will not settle for anything but the best care for my son.

On top of schedule appointments, I got a call back from the pediatrician's office. They got the labs back that the immunologist ran, and all seemed normal except that Brandt is anemic. The nurse said that they wanted me to put Brandt on a multivitamin with iron. When I told the nurse that he was already on one, she didn't know what to say. I then informed her of Brandt's genetic bloodwork and how that affects metabolism, and she said she'd inform the doctor and let me know if he wanted me to do anything further with the anemia. Doubtful, considering anemia is probably a symptom of the much larger genetic condition.

So, the remainder of our month looks like this:
>Follow up with the allergist
>Miami Children's Hospital for a consult with the geneticist

>echocardiogram at Martin Memorial
>4 MRIs at St. Mary's Children's Hospital
>pre-op visit with ENT for tubes

>follow-up with neurologist
>1yr (un)well-baby visit
>And surgery for tubes...

I am not sure if we can fit that much more into our schedule in the course of one month, but the geneticist might have tests of her own that she might want to cram in there?!?!

I'm a little annoyed that I have to pick and choose what appointments I can go to and what appointments my husband can because I am running out of time to take off. So, I guess I won't go to the allergist, well-baby, or ear tubes surgery. I will go to MCH for genetics, SMCH for MRIs, and neuro for results. It kinds of seems unfair that it is this way, but the challenges in life is what makes us stronger, I suppose. Thank goodness the summer is rapidly approaching, and I will have a couple months to take care of as much of his testing as I can.

Oh well, whatever it is, I am ready for it. I will do whatever I have to do to help my so live life to its fullest. I'm head-strong and ready to battle for Brandt!