This week has been one bad blow after another, and I am at a point where I don't know how much more I can take. I need a minute to re-group, and I need next week to be better.
With Brandt's surgery for tubes and his MRI coming up, I had to get a copy of his health history report and physical. I picked that up yesterday, and I was blown away by what I read. The report showed that he had hypotonia and anemia--which I already knew. What blew me away, however, was that it also said he had a specific type of functional heart murmur around the left border of his heart. I was absolutely dumbfounded and irate. I knew nothing of this. How could the doctor put this on the report but say nothing to me or my husband about it? Then it continues to say a few other things that I knew nothing about--things that I have no clue as to the health implications, that I might have liked to of been enlightened about by the doctor. Reading the report ruined my anniversary evening, but I tried to move past it and keep focused on the more important things.
Today, I faxed over a copy of the health history report to the ENT, as was required for Brandt to get tubes. The response was less than appealing. Soon after receiving the report, my husband texted me, "You're not going to f*ing believe this..." That was the beginning of the rest of my day. He went on to say that based on Brandt having hypotonia, anemia, and a heart murmur, they would not perform the surgery--the surgery center wouldn't allow it, and the doctor wouldn't perform it.
I was blown away--how can they not do the surgery? His hypotonia is certainly not going to be fixed overnight, and he is already taking a supplement for the anemia. He could go deaf from the repeated, long-term ear infections. His ears need to be fixed sooner than later. How can a doctor simply not do it? And how does his hypotonia even factor in? It just makes no sense to me.
Immediately, I was on the phone with Miami Children's Hospital. I spent half an hour waiting to get through, but I was glad I waited. I talked to the scheduler for their ENT and carefully explained the situation to her. She said she would have to speak with the doctor and call me back. During that time, I faxed her over a copy of Brandt's health history so there would be no surprises. The doctor and anaesthesiologist both reviewed his file and gave him the green light. We have a pre-op scheduled with them next week, and then we will have to go down another day for the actual surgery.
While I was on the phone with Miami, my husband was busy talking to Brandt's pediatrician about the anemia and heart murmur. The pediatrician ordered some additional tests for the anemia, and he ordered an EKG of Brandt's heart. Darrin immediately picked Brandt up from school to do the blood tests for the anemia, which was another five tubes of blood. And, the hospital is supposed to call us with a date and time for the EKG. But, it is just crazy---an EKG? Really? Like, how many more tests can we do on him? How much more can we put him through? And, how much more can they find that is wrong with him?
I feel like I failed him. I feel like I did this to him. I feel like me getting pre-eclampsia and having to be induced was the cause of this. I feel like if I would have just took it easy when I was pregnant--like if I wasn't running all over the place trying to please everyone else--this might have been prevented. It is a tough pill to swallow, but a pill I won't spit out either.
I am so mentally exhausted that I am just not sure how much more I can take. His MRIs are coming up soon, and I am praying with all of my heart that they won't have the same reservations against that procedure, too. It's just been blow after blow after blow, and I am not sure how much more I can take.
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